Aortic Dissection Survivors in Europe

The first surgery to save a patient with acute aortic dissection was done 1954 in USA, in Huston. Since then USA has been in the forefront to aortic dissection treatment, and also has them most active aortic survivors group on the planet. We can see this from visits to aortic dissection sites, activity on social media, and the number of people engaged in various suport groups.

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Looking for Survivors with aortic dissection in Europe

In Europe lives more the the double amount of people (740 million) compared to USA (320 million), but we talk very many different languages in Europe. And this makes it difficult for people in Europe to find eachother. Most of the survivors in Europe do not talk English. They talk Italian, German, Dutch, Finnish, Norwegian, French, Portuguese, Spanish, Greek, Polish, Estonian, Russian, Bulgarian, Swedish, Danish, Icelandic and many more languages.

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Some European languages and Aortic Dissection

To help our Aortic Survivor friends in Europe find eachother nationally – we have created an European Aortic Survivor Portal – that uses the languages of the people living in Europe.

The idea is to help people in Europe find their national group easily – and find support groups and pages in their own languages. We already now have such support groups in the follwing languages:

English (UK / Ireland)
Swedish (Sweden/Denmark/Norway)
German (Germany, Switzerland/Austria)
Dutch (Netherlands/Belgium)
Italian (Italy/Switzerland/Vatican State)

If you live in Europe – you are very wellcome to join us and find your countrymen and women

#europa #italien #italy #germany #deurschland #spain #sverige #aorta#aorticdissection #aorticawareness #portal #europe

Lady Aorta

Lady Aorta is a result of the Aortic Dissection Awareness Day – September 19 campaign, and the work of a Team behind the scenes. She was originally invented by an aortic survivor in Italy named Shahrezade.

Lady Aorta September 19
Lady Aorta September 19

It all started as an idea for one image, and then the idea grew and Lady Aorta started getting a life of her own. Perhaps Lady Aorta can be a help for doctors and nurses, when talking to families about rare aortic diseases in the future. Especially when trying to explain for younger persons about aortic disease.

Lady Aorta new dress
Lady Aorta new dress

Sometimes photos and images found on internet and in medical brochures can be quite frightening. Also for adults. If you think Lady Aorta is a good thing, please help us share her to doctors, nurses and paramedics. Perhaps they can have use of her already tomorrow.

You can also download images of Lady Aorta from our download site

Lady Aorta postcards
Lady Aorta postcards

As all our image, they can only be used for use that does not involve money, no sales of items, no soliciting, no fundraising etc. To print them and give them for free to hospitals is one example of a great use.

AD September 19 – Playlist Spotify

AD September 19 is a play-list on Spotify with 53 songs. Each song liked and put on the list by one person who has survived an acute aortic dissection. Songs liked by 53 survivors from all around the globe. A playlist made in the global project to unite AD friends globally for Aortic Dissection Awareness Day – September 19

spotify010 kopiera

Still in Love with You – D Burgess, UK, AD B
Drive all night – I Regni, Denmark, AD B
We shall overcome – L Daelemans-Kopp, Belgium, AD A
Mother & Father – S Glassey, New Zealand, AD A
Hellbound Train – J Sanquedolce, USA, AD A
Smile – P Peterson, USA, AD A
Sex on fire – J Prescott, UK, AD B
Fat Bottomed Girls – N McMeekin, UK, AD A
Don’t stop me now – M Hoekeman, Netherlands, AD A
Bird Song – H Staffa, USA, AD A
Stand Up – M Scanlon, USA, AD B
Roar – S Piper Sawinski, USA AD B
Hymn #101 – T Schumann, USA, AD A
Windmills of your mind – S Miceli, Italy, AD B
What a Wonderful World – J Johnson Roth, USA, AD A
Shape Shifter – H Vollenweider, Switzerland, AD A
Running down a dream – A Seed, USA, AD A
Fight Song – C.S Andersen, USA, AD A
Hooked on a Feeling – J Sneed, USA, AD B
I Will Survive – S Davis McLendon, USA, AD B
Dancing Queen – M Andersson, Sweden, AD A
Our God – D Correll Bocka, USA, AD A
Here comes the sun – S Carmada, USA, AD A
Don’t Stop – K Berry, Jersey, AD A
The Rose – R Kohrt, Germany, AD A
Tell your heart to beat again – C King, USA, AD A
100 Years – L Bard, USA, AD A
Live forever – M Almquist, Sweden, AD B
Bridge over Troubled Water – G Hassel, Sweden, AD A
The Sound of Silence – U Hardie, Sweden, AD A
Crazy Little Thing Called Love – S Johansson, Sweden, AD A
Love’s Theme – R. F. Epps, USA, AD A
Chasing Cars – G Hoyland, UK, AD A
Making Love out of Nothing at All – L Wictorsson, Sweden, TAA
One Day Like This – G Owens, UK, AD B
Fields of Gold – A Cotton, UK, AD A
Everybody Hurts – AM Fishwick, UK, AD B
Love You So – M Knox, UK, AD B
Over The Rainbow – L Taylor, UK, AD B
Broken Strings – C Cecil, Wales, AD A
Stuck In the Middle with You – A Roberts-Pagent, UK, AD A
I Wanna Dance with Somebody – B Grunwell, UK, AD A
The Dance – C Tarr, UK, AD B
Slice of Heaven – J Short, New Zealand, AD A
Peaceful Easy Feeling – B O’Keeffe, Canada, AAA
Himlen är oskyldigt blå – A Johansson, Sweden, AD A
Ängeln i Rummet – A Pettersson, Sweden, AD A
Innocent Man – I Ross, UK, AD A
I Lived – S S Brown, USA, AD A
Walk – R Sawyer, UK, AD B
Caruso – T Soderlund, Sweden, AD A
I Run for Life – C Triplett, USA, TAA
Majesty – A.B Bøckmann, Norway, TAA

Enjoy  – to come to the playlist on Spotify – click here

Events on Aortic Dissection Awareness Day – September 19


Event: Survivor luncheon on Awareness Day

Date:  Monday September 19

Place:  Kingston, Ontario, Canada

Arranged by: Mr Bob O’Keffe and family.

Note:  A casual Aortic Dissection Awareness Day luncheon in Kingston Ontario, Canada, arranged by Bob O’Keffe and his family, with aortic survivors and spouses to share experiences, thoughts, feelings, ideas and share thoughts on the awareness day. If you want to join the get-together, please contact Bob O’Keffe.

Link to event: Survivor Luncheon – click here


Event: The 4th Nordic Conference on Rare Diseases

Date:  The conference will be held on the 19th -20th of September 2016

Place:  Copenhagen Denmark, Europe

Arranged by: Danish Board of Social Services in cooperation with the Danish Health                                          Authority, The Nordic Rarelink Group and The Nordic Council of Ministers.

Note:   The conference should contribute to sharing the knowledge which exists in       the Nordic countries on rare diseases and interdisciplinary issues. Also, the     conference aims to facilitate cooperation between the Nordic countries. The conference addresses practitioners working in the field of rare diseases within the social sector and the health sector. During the event the Scandinavian patient organisations for Rare Aortic Diseases (Aortadissektion Föreningen Skandinavien) will hold a short speech about how they founded a real life patient organisation for their super rare disease.

There will be a local get together for survivors who want to meet in Cophenhagen on September 19, in relation to the conference, arranged by a survivor

Link to event: Rare Disease conference – click here  / Survivor Luncheon – click here


Event:  Aortic Survivor meeting

Date:  Monday September 19 2016 at 15:00 local time

Place:  L’ospedale è in Viale Rodolfi, 37 – 36100 Vicenza. La sala si trova nell’ Area D – 7° – Sala Riunioni di Cardiochirurgia

Arranged by:  Ospedale San Bortolo, Vicenza, ITaly

Note:  The Cardiac Surgery Department invites their patients to a joint meeting in the hospital, for a get together with perhaps a cup of coffee and the possibility to meet other survivors. This is a great step by the hospital, and is also part of a work in Italy to build self help groups among patients who survived aortic dissections. Here Dr Paolo Magnana, Consultant Cardiac Surgeon, Division of Cardiac Surgery, San Bortolo Hospital, Vicenza, Italy is doing a fantastic work in support of the Italian survivor community.

Link to event:  Meeting in Vicenza


Event:  Aortic Survivor Luncheon

Date:  Monday September 19 2016 at 11:30 local time

Place:  Hotel van der Valk, Arnhem, the Netherlands, Europe

Arranged by:  Survivor Group in Netherlands

Note:  Survivor luncheon at Hotel van der Valk in Arnhem in Netherlands for Aortic Survivors. The luncheon starts at 11:30, and you should get in touch with the survivors group, or mail to

Link to event:  Survivor Luncheon – click here


Event: Survivor get-together with Swedish “Fika”, including coffee and hugs.

Date: Monday September 19 2016

Place: Bar Centro, Kyrkogatan 31 (tel 031 711 00 27), Göteborg, Sweden, Europe

Arranged by: Aortadissektion Föreningens Skandinaviens medlemmar

Note: Please give notice before if you want to sit, since if you want to sit, there needs to be done a reservation for chairs.

Link to event: Medlemsträff med fika


Event: Mr Göran Hassel will talk about his life. Before he got ill. Getting ill, and life as it is today.

Date: Monday September 19 2016

Place: Kurirgatan 1, Helsingborg, Sweden, Europe

Arranged by: Strokeföreningen Öresund Sweden and MR Göran Hassel

Note: Mr Göran Hassel will talk about his life on September 19 2016 at 14:00. To attend this event there is a registration to the local Stroke Association who is arranging the event.

There will also be a local get together for survivors who want to meet and have luncheon together in Helsingborg on September 19, in relation to the event, arranged by a survivor

Link to event: Strokeföreningen & Mr Hassel – click here / Survivor Luncheon – click here


Event: Get together with luncheon for survivors.

Date: Monday September 19 2016 11:30

Place: Hotell Björken, Lasarettsbacken 10, Umeå, Sweden

Arranged by: x

Note: x

Link to event: Survivor luncheon Umeå


Event: Aortic Survivors Get together with many activities

Date: Monday September 19 2016

Place: London, United Kingdom, Europe

Arranged by: Heart Research UK and Aortic Dissection Awareness  UK

Note: On Monday September 19 there is a survivors get together with a survivors luncheon somewhere in central London. More details will be provided shortly. Stay tuned……

Link to eventLondon event link


Event: Aortic Survivors local awareness event at ASDA Colne

Date: Monday September 19 2016 10:0014:00

Place: Asda Colne in Lancashire, United Kingdom, Europe

Arranged by:  Aortic Dissection Awareness  UK

Note: An event to raise awareness of Aortic Dissection and Aneurysms organised by Denise Shepherd, Coral Edmondson and daughters. Along with a lovely lady who works in the pharmacy and hopefully the general store manager too. The ladies took the time to download the flyers from the wordpress link provided by Aortic Dissection Awareness Day and will hand them out in the foyer, shop floor and pharmacy of Asda Colne in Lancashire whilst wearing their Awareness Tshirts kindly sponsored by Hultafors Group They are a wonderful team of ladies who are organising the event and have had the flyers printed at their own cost. The story behind their devotion to AD Awareness is a sad one. Sadly Jason the nephew of Denise died from a ruptured Aneurysm on the 4th of August 2014  Jasons partner Haley and her mother Coral will be handing out the flyers to create awareness and informing people on the importance of familial Aortic Aneurysm and Dissection.

Link to event: ASDA Colne Lancashire event link


Event: Aortic Survivors local awareness event in Coppull Village

Date: Monday September 19 2016 11:0015:00

Place: Asda Colne in Lancashire, United Kingdom, Europe

Arranged by:  Aortic Dissection Awareness  UK

Note: A coffee morning hosted by Anne Marie Fishwick along with her Mother where 10-12 people will meet for coffee,tea,cakes,biscuits, Hugs and Awareness for Aortic Dissection on September 19th has been planned and details follow here. Anne a wonderful baker of cakes will be making a few trays of cupcakes all decorated with an edible UK Buddie Support Group logo on the top you can see on the event cover photo and will be encased in a union Jack papercase. Anne and her mother will be wearing their Awareness Tshirts kindly sponsored by Hultafors Group and will also be getting awareness day flyers printed by using the wordpress link provided by Aortic Dissection Awareness Day  Events for the first Global Awareness Day don’t have to be a big extravaganza they can be as simple as a walk in the park. or like Anne’s event a few friends round for a laugh joke and a few hugs. Annes Granddaughter will also be there and having met her in the past can only say ….. not too many E colours in the cakes Anne hahaha. Anne says that the friends attending the coffee morning were talking about contributing to the cost, donations and fundraising for Aortic Awareness but Anne told them not to bring any money as all that her mum and herself provide will be donated by them from a kind heart and nothing is asked except to spread the awareness of Aortic Dissection. How wonderful is that….Cakes with special logos, Biscuits, tea, Coffee, Flyers, and entertainment from her Grandaughter the morning will be wonderful.

Link to event: Coppull Lancashire Coffee get together event link


Event: Virginia – Aortic Survivors Luncheon – Get together

Date: Monday September 19 2016

Place: Sentara Norfolk General Heart Hospital, Norfolk, Virginia 23507, USA

Arranged by: The National Organization for Aortic Awareness

Note: On Monday September 19 there is a survivors get-together with a survivors luncheon at the Sentara Norfolk General Heart Hospital, Norfolk, Virginia, USA.

Two days before awareness day, there is a public Aortic Awareness event on Saturday 17 September at 10:0012:00 in the hospital – with an amazing program for the general public visitng the hospital that day: Free Aortic Risk Assessment – Free Blood Pressure – Cholesterol Check – Free Healthy Snacks prepared by an on-site Chef – Freed Tee-Shirts – Bags – Educational material – Cardiac Yoga Demonstrations – Free Therapeutic Messages – NFL Football and HDTV Door prizes. Music provided by the Grassfield Chamber Orchestra. Thoracic Surgeon and Survivor awareness presentations and much more. 

Link to event: Click here


Event: Flordia – Aortic Survivors – Get together

Date: Monday September 19 2016 5:00 PM

Place: Square Grouper TIKI Bar at 1111 Love Street, in Jupiter Florida USA

Arranged by: Lisa B

Note:  Dear Aortic survivors. Let us meet at Square Grouper TIKI Bar at 1111 Love Street, in Jupiter Florida USA, at 5:00 pm for a survivor meet-up. No program more than to meet and to hug another survivor. It would be wonderful to see you on Awareness Day in Jupiter. Please join us.

Link to event: Click here


Event: Pennsylvania – Aortic Survivors – Get together

Date: Monday September 19 2016 5:00 PM

Place: Home of Allison & Robert S 217 E Mount Pleasant Ave, Philadelphia, PA 19119-1833, United States

Arranged by: Allion & Robert S

Note:  Informal gathering of those affected by AD. Accessible by public transportation by those who wish to take it. Learn from and support one another! Today is a good day!

Link to event: Click here


Event: Global Aortic Dissection Awareness Day Celebration

Date: Monday September 19 2016 6:00 PM

Place: 110 S Paca St, Baltimore, MD 21201-1609, United States

Arranged by: Roxanne Bazemore 410-328-4771

Note:  Join the University of Maryland Medical Center staff for a celebration of Global Aortic Dissection Awareness Day. This will also be a kickoff event for our new Aortic Disease support group. Drs. Robert Crawford and Bradley Taylor will speak at this free event. Light refreshments will be served.  This is an opportunity for survivors, caretakers and friends to come together and meet, laugh and enjoy time together. Information regarding our new support group dedicated to Aortic Disease will be provided as well as other social media outlets that dedicate themselves to providing education and promoting advocacy pertaining to Aortic Disease. For information or questions, please contact: Roxanne Bazemore 410-328-4771

Link to event: Click here



You can add you event to this list by contacting the editors of the Global Aortic Dissection Awareness Day – September 19 by sending them a message to the facebook page where the awareness day is monitored. (Click here)


You can easily download high-resolution Awareness Day posters and flyers in many languages for many countries, that you can have printed at your local print-shop. You find the download site when you (Click here)

Aortic Dissection Awareness Day September 1

Download Aortic Awareness Material

We have made all material for Aortic Dissection Awareness Day – FREE – for all friends all over the globe. For you who want to download an print on your own printer or bring it to your local print-shop to get more copies of flyers or posters we have made folders on Google Drive – from where you easily can download your own national material.

Other download folders:




IMPORTANT TO KNOW: our material can only be used for nonprofit use to create awareness around our rare diseases of the aorta like aortic dissection and aortic aneurysm. Neither modifications nor commercial uses are permitted. It can never be used in combination with money collection or sales of any kind, or making fundraising solicitation. The material may not be sold.

18996304 - the word "print". random letterpress type on grunge background.
Aortic Dissection Awareness Day download for print

The reason is that many of the designs (the original flyer, the medical drawings on the flyers, the design of t-shirt, design of design- and profile-items, the logotype, the slogan) have been donated or allowed for use by this campaign – since we do not run charities, we do not sell things and we do not charge people money in any kind, to take part in our aortic awareness movement. Some items are bought under such licenses from photographers through photo sites with use of funds from donors who made donations since we go the “non-money” way to make this campaign free for anyone to take part in. Also for people who have no money to spare. Music used in our videos are used also with these same kind of limited rights for use, from the composers and musicians.

good day breath 02
Today Is A Good Day

When we say free, there is no hidden part where payment is done though fundraising or other kind of fees. Free is free. Also free of postage if printed material is given away as gifts and shipped or sent by post. So feel free to download, print or share, and give away for free. But if you try use if for other uses that what it is inteded for, you need to know that there are agreements made for the use of our free material – to keep it free.


Aortic Dissection Awareness Day – September 19 – coming right up

Today Is A Good Day

This is the slogan for Aortic Dissection Awareness Day – September 19


Here are some photos from the facebook page for Aortic Dissection Awareness Day. Please join us. It is free. We sell nothing – but togheter our voices are strong – and if we can save one life – we have achieved something wonderful. Each life counts.