Aortic Dissection is a rare cardiovascular disease. On Rare Connect a global commuity of friends living with the rare disease Aortic Dissectionhas joined. One of these persons, Dan from United Kingdom, has written his survivor story, and it starts with “Today Is A Good Day“.
The Snow Leopard have been chosen to represent Aortic Dissection Awareness Day – September 19 – a global day to jointly create awareness for rare and lethal aortic diseases around the globe.
Doctors have 6.000 rare diseases to face in their work. Aortic Dissection is only one of these. Then there are ten thousand more known diseases.
We who are affected by aortic dissections (patients, families, friends, the loved one left behind if someone has died in this disease) – we all need to help to communicate important things, like the new knowledge that also persons with no trace of connective tissue diseases, can carry genetic mutations that causes aortic dissection.
One way to do this is to get active on the global Aortic Dissection Awareness Day September 19. Then we can benefit of creating interest around our rare disease, by going out in many cities, to many hopitals, in many countries, all over the globe on the same day.