Events on Aortic Dissection Awareness Day – September 19

2016 Historic EVENTLIST September 19 2016

CANADA – KINGSTON ONTARIO
Event: Survivor luncheon on Awareness Day
Date:  Monday September 19
Place:  Kingston, Ontario, Canada
Arranged by: Mr Bob O’Keffe and family.

DENMARK – COPENHAGEN
Event: The 4th Nordic Conference on Rare Diseases
Date:  The conference will be held on the 19th -20th of September 2016
Place:  Copenhagen Denmark, Europe
Arranged by: Danish Board of Social Services in cooperation with the
Danish Health Authority, The Nordic Rarelink Group and The Nordic
Council of Ministers.

ITALY – VICENZA
Event:  Aortic Survivor meeting
Date:  Monday September 19 2016 at 15:00 local time
Place:  L’ospedale è in Viale Rodolfi, 37 – 36100 Vicenza.
La sala si trova nell’ Area D – 7° – Sala Riunioni di Cardiochirurgia
Arranged by:  Ospedale San Bortolo, Vicenza, Italy

NETHERLANDS – ARNHEM
Event:  Aortic Survivor Luncheon
Date:  Monday September 19 2016 at 11:30 local time
Place:  Hotel van der Valk, Arnhem, the Netherlands, Europe
Arranged by:  Survivor Group in Netherlands

SWEDEN – GOTHENBURG
Event: Survivor get-together with Swedish “Fika”, including coffee and hugs.
Date: Monday September 19 2016
Place: Bar Centro, Kyrkogatan 31 (tel 031 711 00 27), Göteborg, Sweden, Europe
Arranged by: Aortadissektion Föreningens Skandinaviens medlemmar

SWEDEN – HELSINGBORG
Event: Mr Göran Hassel will talk about his life. Before he got ill.
Getting ill, and life as it is today.
Date: Monday September 19 2016
Place: Kurirgatan 1, Helsingborg, Sweden, Europe
Arranged by: Strokeföreningen Öresund Sweden and MR Göran Hassel

SWEDEN – UMEÅ
Event: Get together with luncheon for survivors.
Date: Monday September 19 2016 11:30
Place: Hotell Björken, Lasarettsbacken 10, Umeå, Sweden
Arranged by: NUS

UNITED KINGDOM – LONDON
Event: Aortic Survivors Get together with many activities
Date: Monday September 19 2016
Place: London, United Kingdom, Europe
Arranged by: Heart Research UK and Aortic Dissection Awareness  UK

UNITED KINGDOM – COLNE LANCASHIRE
Event: Aortic Survivors local awareness event at ASDA Colne
Date: Monday September 19 2016 10:00–14:00
Place: Asda Colne in Lancashire, United Kingdom, Europe
Arranged by:  Aortic Dissection Awareness  UK

UNITED KINGDOM COPPULL LANCASHIRE
Event: Aortic Survivors local awareness event in Coppull Village
Date: Monday September 19 2016 11:00–15:00
Place: Asda Colne in Lancashire, United Kingdom, Europe
Arranged by:  Aortic Dissection Awareness  UK

USA – NORFOLK VIRGINIA
Event: Virginia – Aortic Survivors Luncheon – Get together
Date: Monday September 19 2016
Place: Sentara Norfolk General Heart Hospital, Norfolk, Virginia 23507, USA
Arranged by: The National Organization for Aortic Awareness

USA – JUPITER FLORIDA
Event: Flordia – Aortic Survivors – Get together
Date: Monday September 19 2016 5:00 PM
Place: Square Grouper TIKI Bar at 1111 Love Street, in Jupiter Florida USA
Arranged by: Lisa B

USA – PHILADELPHIA PENNSYLVANIA
Event: Pennsylvania – Aortic Survivors – Get together
Date: Monday September 19 2016 5:00 PM
Place: Home of Allison & Robert S 217 E Mount Pleasant Ave, Philadelphia,
PA 19119-1833, United States
Arranged by: Allion & Robert S

USA – BALTIMORE MARYLAND
Event: Global Aortic Dissection Awareness Day Celebration
Date: Monday September 19 2016 6:00 PM
Place: 110 S Paca St, Baltimore, MD 21201-1609, United States
Arranged by: Roxanne Bazemore 410-328-4771

FREE DOWNLOAD HIGH RESOLUTION POSTERS & FLYERS TO YOUR EVENT
You can easily download high-resolution Awareness Day posters
and flyers in many languages for many countries, that you can have printed
at your local print-shop. You find the download site when you (Click here)
Aortic Dissection Awareness Day September 19

 

Orphanet list Aortic Dissection as rare disease

Orphanet is a reference portal for information and documentation on rare diseases.

Orphanet was originally established in 1997 by the French Ministry of Health and the French National Institute of Health and Medical Research (Institut National de la Santé et de la Recherche Médicale, INSERM) as a pilot project. Today, it is a broad partnership of public and private institutions1 including short-term funding from the European Commission.

Orphanet is run by a consortium of European partners. The coordination team, located at the same Rare Disease Platform as EURORDIS – European Rare Diseases Organisation in Paris, is in charge of the infrastructure and produces content for the free access portal including:

• Inventory of over 6,000 RD cross-referenced with other nomenclature systems
• Online encyclopedia for over 3,000 diseases
• Hierarchical disease classification system (according to literature or established in-house)
• Unique and stable Orpha number, to code each disease in the database
• Search facility by clinical signs and symptoms
• Emergency and clinical guidelines for RD.
Currently available in six languages (English, French, German, Italian, Portuguese and Spanish), the portal will continually be translated into additional languages including Dutch, Finnish, Polish and Russian in the near future.

Aortic Dissection Awareness Day BRAZIL FACE GOOD DAY
Aortic Dissection Awareness Day BRAZIL

Since 2011, Orphanet has become global, with the arrival of Canada and Australia. Negotiations are underway with
Argentina, Brazil, Chile, China, Japan and Russia. Currently, nearly 40 countries take part in the consortium.

Eurordis writes more about orpha.net